These conditions are very rare and you might feel isolated and not know where to turn for help. If your child has a dilated aorta caused by a connective tissue disorder, they will need to see several doctors throughout their life for therapy, testing and treatment. Genetic testing, which can identify changes (also called variants) in your child's chromosomes that may have caused the dilated aorta.MRI or CT scan, that takes a detailed image of the entire aorta, which helps us monitor for areas of dilation.Echocardiogram, which is an ultrasound of the heart where we can see the aorta.Physical exam, where we’ll ask you about your child’s medical history and your family’s medical history.That decision immediately led to life changing results in her health. Mahony's unique competency mixed with her personal approach helped us make an incredibly difficult decision regarding our child. Your child’s first visit with a cardiologist will be a detailed, thorough, one-hour appointment. The earlier your child receives treatment, the more likely they are to avoid complications – and to live a healthier, fuller life. Fast treatment for serious complicationsĪ dilated aorta is something your child is born with. We see the whole picture of your child’s health. Plus, we keep track of the reports from each appointment and talk to all your doctors directly about your child’s treatment plan. Our team will handle all the referrals your child needs and set up all their appointments. Keeping track of all the specialists and appointments can be overwhelming and time consuming. Children with dilated aortas caused by a connective tissue disorder may need to see an eye doctor, dentist, orthopedic specialist and/or surgeon. Our goal is to prevent future complications and help your child live a full, healthy life – by harnessing the combined expertise of our team of cardiologists, geneticists, cardiac surgeons and other experts.Ī dilated aorta can affect your child’s body in many ways. Then, we create a comprehensive care plan that meets your child’s needs. In these conditions the aorta dilates because of weakness in the walls.Ĭhildren's Health℠ also treats dilated aortas caused by other conditions, like bicuspid aortic valve, aortic coarctation and other cardiac conditions.įiguring out why your child’s aorta is dilated is the first step in finding the right treatment. Tendons, ligaments, bones and fat are all considered connective tissue. Our connective tissues are responsible for keeping the structure and form of our organs and body. ![]() These include Marfan syndrome, Loeys-Dietz syndrome, Turner syndrome and Ehlers-Danlos syndrome. We have special expertise in treating dilated aortas related to genetic diseases that cause connective tissue disorders. If the aorta becomes too dilated the walls of this blood vessel can tear. Dilated aortas can be caused by genetic conditions and by certain types of congenital heart disease. The aorta is the main blood vessel that carries oxygen-rich blood from the heart to the body. Children with these conditions often face a variety of health challenges and need specialized treatment throughout their life.
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